Facing the World Wide Health Crisis with Vocabulary Control and Standards

Sponsored by Access Innovations

Registration for the 2020 Online Conference includes free attendance at satellite webinars (6-8 October)

Programme

Travis Hicks, Director of Web Operations, American Society of Clinical Oncology (ASCO)

Christina Rudyj, Senior Digital Product Manager, Health Affairs 

Jabin White, Vice President, Content Management, Ithaka

Marjorie M.K. Hlava, President, Chairman, and founder, Access Innovations, Inc. 

The amount of information as well as abundant misinformation available through the web has created incredible confusion among consumers and researchers alike. The need for easily accessible reliable vetted (often peer reviewed) information has never been more imperative. Research results, Clinical study results, best practices, clinical protocols all reported quickly, consistently and well tagged for fast retrieval, and with cross walks to the many encoding systems used across the globe are more necessary than ever before. Worldwide systems like the ICD-10 International Classification of Diseases (ICD) [1] of the World Health Organization (WHO), Medical Subject Headings (MeSH) of the National Library of Medicine (NLM), SNOMED Clinical Terms (SMOMED CT) of the International Health Terminology Standards Development Organisation (IHTSDO), and Current Procedural Terminology (CPT) [2] and Healthcare Common Procedure Coding System (HCPCS) [3] from the American Medical Association (AMA) linked to patient encounters and e-commerce purchasing systems like Ecl@ss [4] and the UNSPSC [5] gives incredible power to the people who need the information on the front lines of the point of care. 

This session will outline role the traditional and non-traditional standards play in the health care industry today ranging from the care that publishers take to encode their information for immediate use; the augmentation of that data into knowledge graphs for policy makers and the new ways in which libraries and their supporting organizations insure accessibility and distribution of the information into the hands of those who need it.  

Yet the challenges faced by health care can be found in any part of both the open data, private collections and HIPPA [6] controlled health areas. The problems include creating well-formed metadata, getting data licenses, assuring data provenance, monitoring data quality, controlling data versioning, guaranteeing data identification, data formats, data vocabularies, data access and APIs, data preservation, feedback, data enrichment, and data republication. Without this data governance – which standards support and underpin we cannot trust the information given us. 

This panel will provide an update on these important standards, specifications, and best practice guidelines that have been developed or initiated by the international standards institutions. In addition to introducing the standards, their application and best practices, the panellists will also bring insight into the adoption and implementation of new methodologies and protocols. We plan to generate discussion vital to assessing effective developments and implementations of standards, vocabularies for a safer world. 

 

References
[1] International Classification of Diseases, Tenth Revision, Clinical Modification.(ICD-10-CM) https://www.cdc.gov/nchs/icd/icd10cm.htm
[2] CPT® (Current Procedural Terminology) Use the Current Procedural Terminology (CPT®) code set to bill outpatient & office procedures. https://www.ama-assn.org/amaone/cpt-current-procedural-terminology
[3] Healthcare Common Procedure Coding System (HCPCS) https://www.ama-assn.org/practice-management/cpt/healthcare-common-procedure-coding-system-hcpcs
[4] eCl@ss has established itself internationally as the only ISO/IEC-compliant industry standard, and is thus the worldwide reference-data standard for the classification and unambiguous description of products and services.  https://www.eclass.eu/en/standard.html
[5] The United Nations Standard Products and Services Code® (UNSPSC®), managed by GS1 US™ for the UN Development Programme (UNDP) https://www.unspsc.org
[6] HIPPA – The Health Insurance Portability and Accountability Act of 1996 (or the Kennedy–Kassebaum Act) was enacted by the 104th United States Congress and signed by President Bill Clinton in 1996. It was created primarily to modernize the flow of healthcare information, stipulate how Personally Identifiable Information maintained by the healthcare and healthcare insurance industries should be protected from fraud and theft, and address limitations on healthcare insurance coverage. https://en.wikipedia.org/wiki/Health_Insurance_Portability_and_Accountability_Act

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