patientINFORM

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http://www.patientinform.org

patientINFORM is a free online service that provides patients and their carers with access to some of the most up-to-date, reliable, and important research available about the diagnosis and treatment of specific diseases. In patientINFORM, consumers have the ability to not only read the latest research, but also to find help interpreting that information and accessing additional materials.

Sponsored and coordinated by STM and the Professional & Scholarly Publishing Division of the Association of American Publishers , patientINFORM is a collaborative effort by voluntary health organizations (VHOs), medical societies, health information professionals, and scholarly and medical publishers. It was launched in July 2005. By working with the VHOs’ patient information professionals, original research is made accessible to patients in an appropriate context, making it easier to understand research findings. patientINFORM empowers healthcare consumers to have improved discussions with their physicians and make informed decisions about care.

How it Works

In Summary

  • VHOs keep up to date with the latest research in their field via access to around 1000 subscription based journals from participating publishers
  • VHOs produce lay summaries of what they judge to be key articles and can create links to the full text of these articles on the publishers' web sites without users encountering paywalls.
  • This means that patients and carers can get an intelligible summary of the most significant and important latest research, but can also access and print out the research article on which the summary is based and share it with their physician, as part of their physician-patient dialogue on matters of disease progression and treatment.

For More Detail

View a presentation giving a brief overview of patientINFORM

 

Coordinating Partners

  • International Association of STM Publishers (STM)
  • Association of American Publishers – Professional & Scholarly Publishing Division

VHO Partners

  • American Cancer Society
  • American Diabetes Association
  • American Heart Association
  • CFIDS Association of America
  • EURORDIS – Rare Diseases Europe
  • Jain Foundation
  • Lupus Foundation of America
  • Muscular Dystrophy Campaign
  • National Breast Cancer Coalition
  • National Organization for Rare Disorders
  • Orphanet
  • Tuberous Sclerosis Alliance

Publishing Partners

*Member of the International Association of Scientific, Technical & Medical Publishers (STM)

Collaborating Partners

  • CrossRef
  • HighWire Press
  • Welch Medical Library at The Johns Hopkins University